Links to websites that is related to BBS
World Map of Bardet Biedl Syndrome at Diseasemaps.org
These are the following facebook groups, BBS friends, LMBBS, Bardet Biedl Syndrome group and Ciliopathies support group, i also belive there is some Yahoo groups too
A guy named Emil Chalhoub, who lives in Melbourne, Australia and lives with BBS, this is his Blog
The Clinical Registry Investergating Bardet Biedl Syndrome Website